Thank you for your assistance in this matter. . The aortic valve lies between the heart and the aorta, the main artery . The problem is I have developed an aneurysm on my ascending aorta of 44mm. Thank you for your time. When patients have moderate to severe aortic regurgitation, exercise can often be difficult. Its also clear-cut that patients with significant enlargement of the aorta to greater than 5.0 cm need operation for replacement of the aorta. There are a multitude of patient-specific circumstances that must be considered when deciding if and when operation is needed. He sees his cardiologist every year. Yes, there are certainly individuals with BAV who go a lifetime without needing valve replacement or aortic surgery. Athletes with mechanical or bioprosthetic heart valves may participate in low and moderate intensity sports, Athletes who are taking blood-thinning medications should avoid sports where bodily injury, with potentially life-threatening bleeding, might occur. After that, most patients can gradually return to activities that put stress on the sternum and upper extremities. I too am looking for information on effects to performance since I am a Masters racing cyclist with 25 years of racing/riding long events. Aortic regurgitation (also called aortic insufficiency), which is a leaky valve. Ever since undergoing open heart surgery in 2010 for her surprise diagnosis of heart disease, Jones has worked as a national ambassador for the American . Ive a BAV with the fusion being between my right coronary and non-coronary leaflets. My name became public 25 years ago this week. Normal biventricular size and function, no scar. The notion is to reduce the number of cycles of heart beat x high blood pressure. Perhaps that will provide so e reassurance. And, of course, its important to monitor over time the function of the prosthetic aortic valve and the size of the aorta. His doctor did not restrict him, but suggested that it may be time to give up the high-level play due to its high intensity training aspect (based on the There, Lucci learned that she had a 90 percent blockage in the main artery of her heart and a 70 percent blockage in another, and needed emergency surgery. that suffer from heart valve disease along with a link to the reference story about their heart valve disease and their Twitter handle can be found below: ), the famous American television anchor, suffers from, ), the Olympic Gold Medalist (Soccer) suffered from, ), a comedian and broadcaster, suffers from a. I currently run 40 -50km a week and do two 2 hour intensive yoga sessions a week. My resting HR is 60-70 BP 110-70, according to doctors have no tissue problems, never had hypertension and was told that I was born with weak threskupid valve. Over time, these patients need to be monitored for continued proper function of both the pulmonary valve (that was borrowed) and the new substitute for the pulmonary valve. I have also been advised that running intervals at over 80% max heart rate would not be sensible. These differences of opinion may be legitimate. Last week I visited a doctor and here are the changes for the last year (before|after): With aortic dissection, the aorta can develop a tear on its inside wall, leading to unraveling of its layers, and even rupture. One doctor to told me just to control it and train as I like but the other one said that with those hearts parameters I will have only 1-2% to have operation in the future but if I will continue to do triathlon for sure I will have to have one. Hello dear doctor. I understand that we are only beginning to learn about the use of ARBs in patients who DO NOT have connective tissue disorders like Marfans syndrome. My questions are: can my root dilation remain stable? Whether 130 beats per minute is a good cut-off truly isnt known. My son is devastated, depressed, and wanted to play ball in college. They can occur separately or together. I am now in no mans land of not needing immediate surgery (per the pressure number in left ventricle) and not being able to run more than 30 min. No aneurysm. Any advice would be greatly appreciated. His last MRI showed a dilation of 4.4cm at his aorta root but his BAV is fine with very little leakage. Thanks for the enlightening article. Benefits: no blood thinning (with attendant risks) needed. Thank you for the blog that addresses the athletes point of view, and feelings. It sort of flutters open and shut. ), Your email address will not be published. Sounds like youre on the right track with your upcoming visit with a specialist. Dear Dr. Creswell, I had a good childhood being very active in sports and physical activity, I had just had to watch out for contact due to warfarin. I do think that this condition can weigh heavily on patients minds, though, and in your case perhaps particularly so because of the experience of your mother. Now I wanted to start again (also due to the 8kg I accumulated in the meanwhile:( ) and I discovered that I can barely run 5K in 30 min and I generally find it very difficult to run. I have no symptoms that I would notice, e.g. Assuming that 2% of the US population has bicuspid aortic valve disease, that is 6,278,281 people. This have affected my son psychologically since he loves playing soccer what should I do. Often times, especially for patients with tissue heart valve replacement devices, the valve simply wears out. Contemporary reports suggest that life expectancy with BAV is no different from the general population. Ive got my results from my recent echo and a lot of normals on there but main things were regurgitation and stenosis were mild with the aorta measuring about 33mm. May 11, 2010 -- Barbara Walters said on Monday that her upcoming heart surgery, a procedure known as an aortic valve replacement, will hopefully correct a problem of which . Specifically, Im wondering about inversions like forearm stand, head stand, and hand stand. Pop Medicine > Celebrity Diagnosis . Arnold Schwarzenegger was born with a bicuspid aortic valve, in which the aortic valve has only two leaflets, instead of the typical three. A different set of. His only complaint or change is shortness of breath with stairs. Mild degrees of aortic regurgitation are usually well-tolerated and do not produce symptoms. Copyright 2021-2022 Baldwin Publishing, Inc.All rights reserved. I dont know what to do .. Congrats! Glad Ive found this website! I have been checked by echo/CT every year for the last 7 years to monitor the progress of my valve regergitation and aortic aneurism. The most common type was type 1 (1 raphe with the raphe positioned between the right and left coronary sinuses (75%), while the second most common type was also type 1 . Mild to moderate ai Thanks for sharing your sons story with BAV. At my last evaluation, my aorta measured between 4.3-4.5 cm, depending on where the measurement was taken, and the regergitation was classified in the moderate range. Apparently I also have a mildly enlarged IVC as well as mildly enlarged left and right atria. I recently also did a 24hr EKG (holter) which was fine. It sounds like youre off to a good start with your recovery. And I dont know if my Cardiologist follows the same guidlines, but I dont think hes under the impression that Im any kind of athlete either. By clicking Accept All Cookies, you agree to the storing of cookies on your device to enhance site navigation, analyze site usage, and assist in our marketing efforts. The CVTI is waging war against the leading cause of death among American men and women - heart disease. His aorta is lightly enlarged. Doc says no problem, but that seems to be contrary to what I see here. Males are affected 3:1 compared to females. Starnes implanted a healthy human tissue valve and said at the time, This will not limit Arnold Schwarzenegger in any way when he recovers.. In short, I consider myself to be a high level athlete. Monica Lewinsky: 25 Randoms on the 25th Anniversary of the Bill Clinton Calamity. No aortic root dialation. coarctation of aorta. After an echo and an MRI with and without contrast, I found out that I have a BAV with mild aortic and pulmonic valve regurgitation. You can contact me on [email protected]. Dear Doctor, This has caused me a great deal of anxiety because I feel like I am being told to act like an old man before my time. looking forward for healthy life without surgery any possibilities??? 2) According to your explanation I rather not do cycling sports, but can I have low intensity sport like cycling or swimming twice a week for 90 minutes each, or 3 times for 60 minutes? BAV is present at birth (congenital). Yes, moderate aortic root dilation can remain stable. The doctor said she would see if she could talk about his case with the surgical panel but she said even if he did have surgery he couldnt have a career in sports??? Your sons cardiologist would seem to be in the best position to offer specific advice. Stress echo revealed hypercontractile with normal response in all LV segments, no LV cavitary dialiation. Any person in my family there was no problem with the heart. I was born with a BAV and but I didnt notice performance issues until the Summer of 2016, so I brought myself to the doctor. Good to hear that youre making a good recovery from your second operation. Bethesda Conference reports), even though there is no certain link between sports and the aorta enlargement. First, Id encourage you to follow your doctors advice. My son was also complaining of shortness of breath with stairs mild and feels tired more easily. Diagnosed at 5 with BAV, checked yearly, and okayed to play soccer. My problem is with cardiologists stating do not lift anything over 50lbs. Compared to our own native valve, all of the available prosthetic substitutes have a small degree of aortic stenosis built in, unfortunately. In addition to being patients, there are many celebrities who, like you, parent a child with CHD as well. My son is 12 years old. It might be wise to have discussion with your doctor about the particular activities youre concerned about. I will keep you posted. Shes quite the athlete. To quickly review, individuals with BAV have an aortic valve with 2 unequalinstead of the usual 3 equal sizedleaflets. Sometimes patients with mechanical aortic valves report that they lose a bit of their top-end athletic performance. The echo in Jan asc aorta Diam 4.2 cm z-score 6.4. Although bicuspid . In your experience, can patients with BAV go a lifetime without having AVR? I am a competitive cyclist, neither the Cardio or my Doctor said I should not be racing bikes anymore, does that sound reasonable to you, my doc did say to monitor the aortic root size yearly. Since you have the ready info about your aortic sizes over time, I will guess that you have a doctor or cardiologist that you are working with. Eventually I will need valve replacement. That is someones life.. No stenosis or regurgitation, aorta 27 mm at the time. Fox News anchor Bret Baier has a . For example, his spurt in enlargement happens to coincide with his spurt in growth. Patients with BAV who have a normal size aorta, with no stenosis or regurgitation of the aortic valve, can participate in sports without restriction. There are many surgical options depending upon the particular circumstances. Thanks. His BAV is causing very little back flow. Several famous people were reported to have had bicuspid valves: former first Lady Barbara Bush, the comedian Robin Williams, and California Governator Arnold Schwarzenegger. I have read that strength training is beneficial for heart health. To me, you know your own body and what you can manage whilst straining as little as possible. They all cause a small bit of obstruction to blood flow as it leaves the heart. Normally, your aortic valve has three cusps that regulate blood flow from your heart to your aorta. Im a 30 year old male who is currently living in Asia with family. The more common form of bicuspid aortic valve occurs in a valve with three cusps with . California Governor and movie star of films including The Terminator and The Predator, Arnold Schwarzenegger marked the 10-year anniversary of his heart surgery at USCs Health Science Campus. As I mentioned in previous comment my recovery is going great. Editorial Review: Andrea Cohen, Editorial Director, Baldwin Publishing, Inc. Im a 51 year old male who had aortic repair (5.8 cm) and bovine valve replacement AVR surgery 2 years ago. Only your cardiologist and heart surgeon will be in a position to make those considerations. Best for athletes like you to have a discussion with their doctor(s) and settle on a defined, mutually acceptable course of action about which sports activities are safe. I do think that aspects of the martial arts are strength-related. Dr Creswell, Im used to long runs up to 12 miles at an average 6 minute per mile pace as well as fast interval and farther training. But Ill check it as soon as possible. This site complies with the HONcode standard for trustworthy health information. May 10, 2010, 4:50 PM. Theres no reason to not be CPR certified.. 140 miles at race pace. The doc states that basketball is a contact sport in her medical books and we would need to consult with another doctor to possibly get approval. Another possibility that you havent mentioned deserves some discussion with your sons doctor(s) or surgeon. Or usually lead a normal life? I am now down to seeing my doctors every 3 years or so and have been doing very well. Bobbie. Tyler. Today, echocardiography (ultrasound) for screening or diagnostic purposes for some other heart problem is the most common way that BAV is detected. Heart disease and stroke are the number one killers of women, Streisand, 74, told PEOPLE about why she helped found the organization. Ive been told by my cardiologist that they think I should probably avoid competitive rowing and weight lifting. Thank you so much for your reply. In general, we recommend no weight lifting in patients with BAV if the aortic diameter is greater than 4.0 cm. She learned she needed an aortic valve replacement in 2009 and underwent open heart surgery, receiving a mechanical valve to replace her damaged aortic valve. What activities can I do? And during the years, this remained pretty stable. Thoughts. I know what theyre saying and after that I know that I have mixed feelings because I feel depressed about not being active like I used to be, but then I feel selfish as I am not being grateful. Want to get a head start on your Oscar predictions? Related posts: My last CT scan in November showed a change from 4.3 (May) to 4.5 (November) however I was only given these results yesterday. Thus far shes had only minor bruising (shes 6ft and has a solid build). "Women are the natural caregivers; we take care of everyone else under the sun," she says. when I discussed this with my Dr. he reassured me that its not my heart causing it. Adam Pick is a heart valve patient and author of The Patient's Guide To Heart Valve Surgery. Learn more about Baldwin Publishing Inc.editorial policy,privacy policy, ADA compliance andsponsorship policy. My sinus of valsalva is at 4.8 and my BAV is functional (discrete regurgitation). SPORTS FIGURES/ATHLETES. Im obviously quite anxious that Ill drop death! You are a very good man. Not sure I have something specific to suggest for additional reading.and I dont know where to steer you about a knowledgeable trainer in the UK. Seek different pediatric cardiologist/hospital (we have not seen a cardiologist yet)? Lack of breath? Its now 8 months after surgery and Im pretty much back in my every day life, was even granted to attend my pilot medical tests which are due in 2 weeks. The cardiologist doesnt do the surgery we have to go to another province to have surgery. Hey was born with BAV and moderate regurgitation and stenosis, and dilatation of his ascending aorta. Regards If so, youre far from alone. Normal LV diastolic function. Jones' goal with the AHA is to help women "actively put themselves on the track to heart health." Maybe you can help me with some questions. I have repeatedly asked each follow up, if continued marathon training is OK. Im always told it is fine with the old adage of listening to your body. The value of CT/MRI comes when a millimeter or two makes a difference in treatment, restrictions, surgery, etc. Like you point out, its always wise to be vigilant after surgery for things that might be amiss.and get checked out. I feel fantastic and have already been walking the streets of Cleveland enjoying your amazing statues. Replacement of the aortic valve with either a cryopreserved human homograft (the aortic valve from a human cadaver) or with the patients own pulmonary valve results in the least obstruction to blood flow. To save nice heart the best would be doing nothing (! Finally some solid information about exercise and life post AVR, thank you very much for that. Thanks very much for this Dr, it is really helpful to get someone elses opinion on the subject and Ill definitely raise those points with my cardiologist next time we meet. I was diagnosed with BAV, with regurgitation, no stenosis, at age 63. Push for earlier date? Thanks for sharing an update. It sounds like youve gotten conventional advice regarding sports where there is a risk of bodily injury. Danny. In Jan 2016 My son was seen by the cardiologist and had some changes on his echo and the cardiologist said hey had mild progression of the aortic regurgitation( moderate to severe) with preserved LV function. Dear Dr. Creswell, We also sign a school waiver every year. Thanks for my previous response a few weeks ago. In fact, in some people they can go undiagnosed for years. As I train triathlon I check my heart every year and there is small back flow (the same last 5 years). Hamilton mother of twins, Cherie was diagnosed with bicuspid aortic valve disease (BAVD), a disease where the valve has only two leaflets. Dr. Larry, thank you very much for your blog! To me, cardiologists are not sports people and air on being absolutely over cautious. Dr. Larry, I do appreciate your insightful article very much. This valve repair option is one that might best be pursued at a center that specializes in this problem. Have tried to get a personal trainer that specialises in all things heart related here in the UK but there don`t seem to be any around despite searching. Thank you very much for the answer! 2) He can lead a normal life & can continue his training with regular echocardiography control (once in a year). When there is narrowing (stenosis) or leakage (regurgitation) of the aortic valve, the heart must do extra work.
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